Wordless Wednesday: Fibro Cannot Find Me!

Wordless Wednesday: Trick or Treat!

May your Halloween have lots of treats & few fibro tricks!

Side Effect Warning: Sun Sensitivity

Since many of you may be taking medication (prescription and/or OTC) or supplements for your fibromyalgia, I wanted to share a little warning.  Last weekend, I ended up with a severe sunburn on a partly cloudy day, cool day.  I've never burned so easily in my life.  Consequently, I set out to find out a possible explanation as to how I could suddenly burn so easily and so horribly.

On the suggestion of a friend, I researched the OTC medications and the supplements I take daily to see if any of them cause an increase in sun sensitivity.  I was shocked to find out that Aleve (and other NSAIDs can have this side effect).  My doctor was the one that prescribed this OTC pain medication to me, and he didn't mention this possible side effect.  And I've never read such a warning on the packaging.

Read more about my surprising and painful ordeal here.

To avoid the excruciating pain I went through this past week, I'd suggest that you research any and all medications and supplements you are taking.  And if sun sensitivity is a possible side effect, please, don't take this symptom lightly.  Don't think that you are okay simply because you don't burn easily.  Use sunscreen, wear a hat and/or other protective clothing, and spend more time in the shade if you are going to be outside for long periods.  A little caution could help prevent this from happening to you!

R...Regular Rest and Relaxation

Normally, I’m true to my word. I say what I mean, and I mean what I say. I am one of those people who always tries to practice what she preaches. However, when it comes to ensuring that I have enough rest and relaxation I have a hard time following my own advice. From all the research I have done on fibromyalgia over the years, I know how important sleep is, especially with those suffering from a chronic illness. In fact, I know that overworking myself and getting an average of 4 to 5 hours of sleep a night during my college years is part of why my fibromyalgia is so active. A person cannot go through life getting little sleep and working too hard without there being consequences.

Yet, lately my sleep schedule is chaotic and my amount of sleep is too low. April has turned out to be a hectic month. I underestimated the strain of doing the A to Z Blogging Challenge with three blogs. I didn’t foresee several family emergencies. I didn’t make a concrete schedule until this week, so I failed to visualize just how overbooked I was becoming this month. It didn’t take too long before I realized I’m in over my head this month.

I am not one to give up. I don’t back out of my promises and obligations. Thus, until this month is over, I will continue to skimp on my rest and relaxation. But beginning next month, I plan to be much wiser with my schedule. I’m going to write down every single appointment, assignment, obligation, and event from now on. That way I’ll be able to see when I start putting too much on my plate. Furthermore, I guarantee I will be getting at least 7 hours of sleep every night. I haven’t felt this tired and overwhelmed in a long time, it is never going to happen again!

If we don’t take care of our bodies, who is going to do it? We’re stuck with the same body our whole lives, so why do we treat ourselves with such disrespect and disregard? I promise myself today that my physical well being is and will stay a top priority. I will stop treating my body poorly, while expecting it to function normally. I will find ways to nourish, refresh, and support my body. I will do more of the things that make me happy, healthy, and relaxed. And I will do less of the things that leave me stressed, exhausted, and sick.

Will you do the same? Will you promise today to start taking care of your body? Will you join me now and begin really considering what is best for your health?

A Holiday From My Holiday

Fireworks Grand Finale

Yesterday was Independence Day, one of my favorite holidays. I spent the day with my family. We had a cookout at my future mother-in-law’s home with lots of good food and wonderful conversation. We had 5 hours of relaxing and socializing outdoors. Afterwards, we drove to see a local fireworks display and then returned home for a few sparklers and small fireworks with the neighbors. Overall, I would say that it was a happy, enjoyable day. I went to bed close to midnight last night with a smile on my face!

This morning, though, I awoke and felt as though a train had run over my entire body--twice! No, I did not run a marathon. In fact, the most physical thing I did all day yesterday was make a dash from the picnic area to the back porch when it started to rain (a distance of only a few feet!). For all intents and purposes, it was a lazy holiday, and I should have awoken refreshed. Instead, I have been forced to stay in bed for the majority of today.

For all of you who suffer from any condition that involves fatigue and chronic pain, you know what I am feeling right now all too well! I am suffering from what I like to call “holiday-from-my-holiday” or “day-off-from-my-day-off” whiplash. This state of necessary recuperation occurs whenever we decide to do too much on our free days. It can manifest in many sneaky ways and usually occurs when we are having a lower symptom day. We decide to have a cleaning/working marathon to catch up from a tough week. Or we have the opportunity to do an activity we haven’t done in years, and we get overzealous. Or like me yesterday, we underestimate the physical, emotional, and mental toll a long (albeit laidback) day can have on us.

When we were healthy we could go with the flow and do whatever we felt like at the moment. If we were energetic, the world was in our hands. We were free to seize the day! Now, though, with a chronic pain and fatigue, we can’t go solely by what our bodies and minds want. Sometimes, our bodies fight us at every turn, and we must push to get the simplest tasks finished. Other times, our bodies lie and make it seem as though we are almost normal again.

Even though I have been dealing with fibromyalgia for half my life, I still fall prey to this trap time and time again. I’m a ball of energy by nature. I love to be moving. I love to be accomplishing things. Hard work makes me feel good. I was raised to work hard and then push even harder. And I’m a perfectionist to a fault at times. I compete with myself constantly, and I always set high goals.

Unfortunately, fibromylgia and this mentality can be an explosive combo. My stubbornness and inner determination have helped me in so many ways over years. At times when I thought for sure I couldn’t go on because my symptoms were so unbearable, my inner strength and focus pushed me through. However, this hardworking perfectionism of mine has also done its share of harm. I have inadvertently confined myself to bed for over a week (several times) simply because I felt pretty normal and thought I’d get a ton finished before my symptoms flared up again. Even now I’m tempted to go into a cleaning/working frenzy EVERY single time I have a better day.

Ultimately, living with such a limiting medical condition is an extreme balancing act. We can’t allow our health to dictate how we live our lives or to define who we are as individuals. Yet, we can’t ignore it and pretend that we can still live the same lives were living before. We should never let it defeat us, but we can’t push so hard against our own bodies that we are defeating our own selves. We must find a happy medium--a place where we are free to be ourselves and to live life to the fullest, while still planning and living through the confines of our symptoms.

We need to be much more adaptable and pliable. If our bodies block one avenue, we must never give up on finding another more richer path. I am not one of those people who will ever throw at you the ‘if-life-gives-you-lemons’ advice. Sometimes, the fact of the matter is life can be pretty unfair and leave us with unripe, un-juicable lemons. We can sit around and grow bitter. But what is the sense in that? Personally, I’d much rather throw away the lemons and live my life the way I feel it should be lived!

Let us grab life by the horns this month and show it who is boss! Instead of complaining about life happening, let us shape it and enjoy it like we never could have before facing this formidable foe. They say that ‘necessity is the mother of invention.” Well, we need to find a life that works better for us. So, let us start inventing it now. How we live our lives is truly in our hands!