B is for Bathtubs

The next helpful must-have for people with fibromyalgia is a big, relaxing bathtub. When I used to have a bathtub, I grossly took it for granted. When I was experiencing a severe flare I never failed to utilize this beautiful blessing two...three...even four times per day. I stocked up on Epsom salt, moisturizing bubble bath, and relaxing bath oils to help combat my fibro symptoms. It wasn’t until we bought a home with only a shower that I came to realize what I had lost.

There is something incredibly soothing about gently floating in a hot bath after a long day. Wet heat and Epsom salts eased my stiff, achy, cramped muscles. Warm water combined with moisturizing bath soaps or bubble bath brought amazing relief to my itchy, dry skin. And relaxing bath oils melted away the stress and tension, as well as helped me combat insomnia. I miss those days, and I’m hoping to save up money to install a bathtub soon!

All my fibro warriors, I highly recommend you take full advantage of your bathtub, and if you don’t have one, it would be wise to eventually install one. A shower feels nice, but it never seems to get the heat deep enough and it prevents you from soaking and relaxing. Bathtubs might seem like ordinary, everyday parts of our home, but it is certainly a godsend in disguise. I have yet to meet someone with fibromyalgia who doesn’t agree that bathtubs make the perfect break from the fibro struggle.

A is for Air Conditioning

For the A to Z Challenge, we will be discussing some fibromyalgia must-haves--things that often help us fibro warriors to deal with or decrease our symptoms or to make our lives a little better or easier.  Fibromyalgia is a complicated condition, which manifests itself in vastly different ways.  Some of these in my list may not work as well (or even at all) for some of you.  However, I tried to stick with the bare essentials, so you will find many helpful tips over the next month.

So, without further ado...A is for air conditioning.  I know many people in the U.S. are just recovering from a frigid winter, but summer will come and with it, hot, humid days.  I have heard that they are predicting an extra hot and humid summer this year in many parts of the U.S.  Consequently, I’m working away at creating my summer oasis--somewhere I can hide when the temps get too high and too unbearable.

I’ve noticed that I can’t handle extreme weather (cold or hot), and many of my fibro friends are the exact same way.  For many of us, hot and humid weather saps our energy, increases our headaches, gives us intestinal issues, and even may give us rashes.  So, it is imperative to have a plan to combat the summer heat and humidity.

Having air conditioning in your home can be perfect, too, if summer heat causes you grief.  However, it isn’t always possible to have air conditioning or the power may go out, so create alternative plans. There are many ways to help you stay cool: (1) set up a comfortable spot to relax in the basement. (2) Stock up on fans (or even misting fans).  (3) Keep your fridge and freezer full of cooling drinks and treats.  (4)  Jump into the pool, shower, or bathtub.  (5) Limit time outside during peak sun times and while excessive hot and/or humid.  Or (6) if the summer weather gets too unbearable, find a public air-conditioned spot (mall, restaurant, grocery store, loved one’s home, etc.) as your fall back spot to take a break.  With a little planning, we can all get the most fun and enjoyment out of summer despite the sticky weather.

It Is A to Z Blogging Challenge Time!

Dear fibro warriors and supporters,

I apologize for my lengthy absence. For the last few months, I’ve had to deal with a horrible flare up--only rivaled by the original flare that sent me seeking answers and help 5 ½ years ago. Blame stress, the incredibly harsh winter, the unpredictability of this debilitating condition, or a combination of all of the above, but I’ve had little strength, energy, or clarity of mind to blog for far too long.

However, I am back and attempting to get back in the saddle again. It is April. It is a new month. Spring has sprung...and with it, a little more of my energy and health. The beginning of April also marks the start of the A to Z Blogging Challenge.

At first, I was reluctant to participate on this challenge for the 3rd year in a row. I’m just beginning to feel more like myself. I am obviously rusty with blogging. And I have plenty of other obligations and responsibilities on my plate already. Still, April only rolls around once a year, and I am always one to seize the day--or in this case, the month--whenever possible. Life is precious. My writing is precious. My relationship with all of you is precious, too.

Consequently, I am pleased to announced that, a day late, I have entered all three of my blogs into the A to Z Challenge again this year. Buckle up and hang on for a grueling but exciting ride. Stop by every day of April (except Sundays) to see if I can blog though fibromyalgia and other related topics from A to Z. Can I do it? Can I write 78 blog posts between my three blogs before the month’s end? Only time will tell!

Health and Happiness to You All,

Amanda

Post © 2014 Amanda R. Dollak. Image Credit: Blogging from A to Z April Challenge

Poetry: And Yet Fibro Remains!

This shell of a body,

Which once was fit and strong

And let me soar, oddly

Keeps me trapped all day long:

Limbs are heavy and weak;

Bones cry out from the cold;

Joints and muscles e’er creak...

Making me feel so old!

Skin breaks out in rashes,

And it almost always hurts.

Energy e’er crashes

And returns in small spurts.

Memory is broken,

Many thoughts get mixed up.

Many fears unspoken

In a nightmare closeup.

Anxieties abound;

Doubts have dampened my soul;

Manic anger resounds

As I fight for control!

Head is stuck in a vise

And struggles with migraines.

Mind is filled with ‘advice’,

And yet fibro remains!

© 2013 Amanda R. Dollak

Wordless Wednesday: Fibro Cannot Find Me!

Perspective Is Everything

On a regular basis, I wear so many different hats:

• woman
• wife
• stay-at-home mom
• sister
• daughter
• aunt
• friend
• writer
• poet
• learning coach
• animal lover
• photographer
• artist
• believer
• thinker
• dreamer
• helpless romantic
• music lover
• cook
• maid
• confidante
• nerd
• protector
• book fanatic
• chocoholic
• couch potato
• nature lover
• gardener
• bleeding heart
• puzzle addict
• fibro warrior

The list really goes on and on. But the titles I hate most are perfectionist and overachiever. The previous list is a long one, and my plate is usually overflowing with a towering heap of these roles and interests. However, no matter how much I accomplish, the perfectionist/overachiever side of me points out everything I did wrong and didn’t finish. It is relentless!

I am currently sick--again--so my house is messy and needs a good cleaning. My chronic illness, fibromyalgia, puts a damper on my career ambitions, making it impossible to work a traditional job outside my home right now. Oh, and I can’t forget that I don’t get to do many fun things with my kids anymore. Lists of my flaws, shortcomings, disappointments, and failures could fill my entire home many times over.

Nevertheless, none of that matters. What matters is how hard I try every day to be the best person I can be. My house may be messy right now, but even with a head cold that makes me dizzy, I’ve managed to put dents in the mess throughout my home. Fibromyalgia may be trying to ruin my career, but it helped give me the courage to strike out and reach for my writing dreams. Plus, it gives me a new way to help and reach people. Oh, and as for my time with the kiddos, they still know I love them. We have many wonderful memories to cherish, and we are still making more each day.

Life may get easier. It may not. But either way, if I focus on what I CAN do and do my best always, I know I’ll be able to look back one day without any regrets. I can only accomplish what is within my current limitations, and I need to forgive myself when I can’t do it all. There is always tomorrow for anything that is left over on my daily to-do list.

If you are struggling with this issues, as well, I encourage you to focus on your abilities only. Try to let everything else roll away. No matter what anyone else says, you are NOT lazy and you DO accomplish enough. A chronic illness is a full-time job, and everything else must fit around that (just as any other person with long work hours). Please, remember that your health should always come first!

© Amanda R. Dollak 2013

My Health Is a Priority, Too!

After a week of taking my vitamins and supplements again, I'm feeling a lot more like my happy self.  No, I'm not pain free and super energetic.  I may never be.  But it is wonderful to be back to my functioning norm again!

My accidental self-imposed flare (because I kept forgetting my vitamins) has reminded me of how often we neglect our own health.  We rush through life trying to take care of our loved ones and to provide for our families.  We are so busy rushing from here to there and back again that we forget one important person: ourselves!

Now, I'm not saying it is time to get all selfish and think of only numero uno.  That wouldn't be a healthy way to live either.  However, it IS healthy, good, and advisable to think of our wellbeing, too, in the midst of daily life.  In the end, what it comes down to is if we aren't going to take care of ourselves, how will we take care of our others and provide for them?

I know it is a hard thing to grasp.  There is so much to accomplish in a single day already, so how can we make some time for ourselves?  Or we have convinced ourselves that it is okay to sacrifice now because we can rest later, after things quiet down.  Or we may tell ourselves that it's selfish to think of ourselves when other people need us.

Regardless of what excuses we conjure up, our health and wellbeing are and should be important to us. Our bodies are quite fragile.  They can only handle so much abuse and neglect before they start to break down.  I learned this difficult lesson a few years ago.

I am living with severe fibromyalgia constantly because (I believe) I disregarded the warnings my body was blaring and pushed myself too far for too long.  I had fibro symptoms most of my life, but never this severe or constant.  If I overextended myself here or got a little too physical there, I felt it.  But within weeks, the worst was behind me again.  I can pinpoint the onset of this constant fibro flare to August 2008, right after I graduated college.  And up until last year, my symptoms were steadily getting worse.

Since I began taking better care of myself (although I still have much to learn, obviously), I have constant pain and fatigue, but the severe levels come and go.  No longer am I bedridden.  No longer am I stuck in my house all the time because of pain and overwhelming anxiety attacks.  Those days are gone, and I plan to NEVER allow them to come back!

The biggest turning point in my life with fibromyalgia was the day I gave myself permission to think of myself and to take time out just for me every day.  I don’t always follow through on that permission. Sometimes I forget.  Other times I still feel guilty.  And once in a while, I get so frustrated with my body that I give up on myself for a spell.  However, each and every time, I come back fighting harder for the things that help me be healthier and happier with fibro.  And that, my friends, is all that matters in our daily battle with chronic illness.

© Amanda R. Dollak 2013

Wordless Wednesday: Trick or Treat!

May your Halloween have lots of treats & few fibro tricks!

I Act Like a Moron Sometimes

I am always one who tries to focus on the positive and what is healthy.  But, sometimes, we all occasionally need to hear the bitter truth, and I am no exception  That is why I am going to admit today I sometimes act like a total moron.  Yep, I said it.  I own up to the sad truth, so I can learn from it and move on.

Most of the time, I am an intelligent and sensible woman.  I have book smarts, common sense, and plenty of life experience for someone my age.  But to be completely honest, I do dumb things sometimes...things that leave me shaking my head in total disbelief.

My latest walk with stupidity is health related.  I have had fibromyalgia for years, and it has been severe for the past 5 years.  Since traditional medicine didn't work out, I've experimented with many lifestyle changes.  One of the things I've found which helps improve my symptoms and my quality of life is supplements.  I take vitamins B, C, D, and E daily.  Each morning, I also take magnesium and calcium supplements and probiotics for my IBS symptoms and urinary health.  That equals 9 pills to take every single morning.  Yes, it is a hassle to choke all those pills down daily.  I'd much rather be doing a thousand other things

.

However, without them, I'm back to being stuck in bed and miserable.  So, why do I keep forgetting them?  Why do I not make my supplements a priority?  I went a week without taking them--again--and I feel awful--again!  I knew this would happen.  Yet, I kept putting my supplements off again and again.  Does this make any sense to you? It doesn't to me, so I can only conclude that I can be a total moron at times!

So, once again, I'm making a pact with myself to make time every morning to take my supplements, no matter how disgusting they are or how busy life gets.  My body isn't going to take care of itself.  No, it is MY responsibility.  My body is precious and irreplaceable, so I promise to take care of myself today and always.  All of the hard work and discomfort will be with it in the end because letting my health go will only lead to worse and much, much more unpleasant consequences.  I'll thank myself later!

Have you ever forgotten your supplements or medications, as well?  If so, do you have any special  techniques that help you remember?

Wordless Wednesday: For You, My Fibro Warriors!

Happy Wednesday, everyone!

Fitness Does Not Have to Be Futile with Fibromyalgia

October 27th will mark my 2-month anniversary of scheduling morning walks at least every week day. In the process, I gained 6 pounds and then went back to my starting weight. I’ve questioned my sanity. I’ve wondered if it is all worth it. I’ve struggled with my self-doubts and wrestled with my fibromyalgia. I celebrated my triumphant first run in at least 5 years. And I continue to be frustrated that the scale simply won’t budge!

Still, I’m NOT giving up! I refuse to let my fibro and extra pounds defeat me. I know in my heart I’m making progress and that is ALL that matters. I am experiencing spurts of energy like I haven’t known in ages. Yeah, I still get exhausted from my walks, but they don’t kill me anymore. Plus, I can now do a hilly 25-minute mile. Nothing fancy or noteworthy for the normal person. However, for this fibro warrior, who couldn’t even make it around the block the majority of the time when I first started, that is reason to celebrate, indeed!

Oh, and take a nice long look at the photo accompanying this post. At the beginning of my fitness challenge, I filled every inch of those jeans. The scale may insist that nothing is happening, but clothing doesn’t lie. My eyes and measurements don’t lie either. My stomach is slowly shrinking. My thighs and hips are tightening. My rear end is lifting. My poor bust is shrinking (but I know eventually it’ll all even out again!). So, who cares if I weigh the same yet? Not me!

I know I am building a solid foundation for future health and weight loss. I’m bringing back my muscles. I’m recreating the first real determination and consistency with fitness since fibromyalgia hijacked my life. And little by little, I’m reminding myself I still have it in me to be fit and healthy even with chronic illness in the mix.

What are you doing this month to reclaim your fitness and health?

Wordless Wednesday: It Is a New Month

Photo Copyright 2013 Amanda R. Dollak

It's a new month!  What steps are you taking in October towards being fibro and fancy free?

I Got Lost Today

Snapshot from my walk

I got lost today. For a month now, I’ve been taking a morning walk every weekday. I head out each morning from my door and pick one of two paths: a hilly route around my block or a flatter but longer route around the dead-end street above my home. I chose the latter today, which makes this my sixth walk on this route.

It’s a pretty simple route: (1) walk from my house to the intersection. (2) Follow the curving street until it reaches the dead end. (3) Then turn around and retrace my steps back to my house. It’s so simple that I’m sure my dog could walk it on her own.

But anyone with fibromyalgia soon realizes that nothing is ever easy with this debilitating condition. As usual, my 7-year-old son (who I cyber school at home) and I eagerly set off on our morning walk with our family pooch in tow. I noticed immediately that the morning air is getting crisper and the beautiful fall leaves are beginning to adorn the world in all their glory. Fall is my favorite time of the year, so soaking up the many sights, sounds, and smells of autumn is exhilarating. And I was filled with such contentment and happiness this morning…

...until my fibro fog decided to strike with a vengeance! One second, I was admiring the splendor of fall and taking a few snapshots with my cellphone. The next I found myself dizzy, disoriented, and with no idea where I was. For a few split seconds, my surroundings looked completely foreign, and I felt like I was lost!

Believe me, my first reaction was to panic and freak out. My heart started racing. My anxiety suddenly reared its ugly head. I began sweating profusely. And my entire body started trembling.

Catching a glimpse of my son, though, in my confused state, I reminded myself that I really needed to take a deep breath and try to come down. I know from experience the more relaxed I can make myself, the quicker the brain malfunction passes. Plus, I didn’t want to scare my little buddy.

As such, I closed my eyes for a few seconds. I took a few slow and deep breaths. And I pushed all the panic away. As soon as I opened my eyes, everything was back to normal as suddenly as my brain had gone blank. I recognized every house and every tree. I could visualize the way home even without looking behind me. With that realization, I sighed a HUGE sigh of relief. Another one of those horrifying (but far and in between moments--thankfully!) had passed.

My son and I finished our walk with our sweet doggy and continued on with our day like any other. Still, part of me couldn’t help but harbor the notion--just for a fleeting moment--what if one of these colossal brain farts (as my husband calls them) settles in and never fades away? What if I’m stuck in a state of intense confusion for the rest of my life? It’s a frightening thought, indeed!

Yet, I refuse to allow that thought to stay and fester. Ultimately, life is brimming full of what-if’s for everyone. Life is forever opening up new possibilities every second: both good and bad. However, only a handful of them ever happen, so it would be pointless and insane to obsess over the bad things that may happen (or probably will never happen) someday. If we focus too much on the negative possibilities, we’ll miss all the wonderful things that DO happen. Instead of enjoying the here and now, we will be squandering the present by worrying over what possibly won’t ever happen our entire lives. That’s certainly no way to live!

Consequently, my weekday morning walks WILL continue like nothing ever happened. Hey, I may get lost for brief moments from time to time with my fibro-dysfunctioning brain. It’s bound to happen since it’s happened before. But I refuse to allow a distant possibility to sideline me from living my life as fully as I can. Fibromyalgia steals plenty of my precious seconds. I’m not about to freely hand over any more of my life!

Brain Crashing in 10...9...8...

My brain will be crashing in 10...9...8...better make a mad dash under the covers! Even though I was having a great time tonight writing blog posts and working on a compilation of short stories, I’m on my way out, folks. My fibromyalgia was acting up with severe itchiness over my entire body--like it likes to do every now and then. I was forced to take two pills of Benadryl, and that stuff always throws me for a loop!

I’m seeing every color of the rainbow. My eyes are trying to wander off in different directions. I can’t even type the right keys because I can’t concentrate. Oh, and don’t get me started about how my head is buzzing like I drank WAY too much tequila.

I’m trying to push through it a tad bit longer so I can wrote a little old post stating that I’m thinking of and praying for all my fibro warriors tonight. My road is horrible right now. My symptoms are on a major flare up because I’ve already overworked myself and it barely is Thursday.

My friends, may the rest of your week be fruitful but still allow you rest. May your happiness be plenty and your symptoms few. May your body act as strong as I know you are in spirit. And may life surround you with blessings from above. Take care, everyone, and keep fighting the good fight!

I Ran Today!

Ok, break out the banners and balloons. Unleash the confetti and white doves. And cue the band for some awesome celebratory tunes...and don’t forget to clap your hands off, people. I ran today! No, it wasn’t a dream. I was wide awake, running on the two excruciatingly sensitive balls of nerves that fibromyalgia has made out of my once fit and active legs!

I am tempted to overdose this post with excessive exclamation points because on my darkest days, I assumed that my running days were over. Since some days I can’t even walk, a part of me convinced myself that I would never run again...except for in my dreams. But after 25 days of walking at least a half of a mile every weekday, I finally ran again!

It WAS for only about 4 minutes. I DID have to stop twice for a few seconds. It WAS on a slightly downhill part of my walk and gravity helped. And I DID feel like I was going to vomit and faint at the same time. However, I didn’t vomit OR faint, and I successfully hobbled back home beaming!

I doubt I’ll be winning any races anytime soon since my 11-pound dog and my 7-year-old son were beating me down the hill. But I ran! Yes, I ran for the first time in about 5 years!!! Can you feel my excitement and accomplishment I’m feeling here yet?

When chronic illness takes over our lives--especially when chronic pain is involved--it’s so hard trying to find a balance that works. Our minds want to live like we used to and mourn the days gone by. The illness strives to make us crash and burn, trying to convince us life is over. Consequently, our bodies are stuck in a kind of tug-o-war, violently turn back and forth between our mind and our chronic illness. If we focus too much on life before our illness, we will only run ourselves into the ground trying to be something that we aren’t anymore. On the other hand, if we focus too much on our health problems, we will be left wondering why life is still worth living.

Ultimately, it comes down to determination, moderation, and baby steps. Instead of focusing on what we used to do or what we no longer can do, we need to focus on what we CAN do right this very moment and make little goals to challenge us a bit further at a slow and steady pace. When I decided that I was going to add a little walking each weekday morning into my schedule I never imagined that I would be able to run today. Instead, my goal was to make it around the block in my neighborhood each weekday. I wasn’t concerned with how fast I was going or how many breaks it took me to make it around the block. I simply wanted to make it around the block Monday through Friday to increase my physical activity and to build up the strength and stamina in my legs. And I did that...and so much more!

If you are out there struggling in your life (like I and so many chronic illness sufferers are every day), please don’t give up. Our roads are not the same, but I understand so well that the journey with chronic illness is a hard one. Still, we canNOT allow our health problems to win! Even if our daily successes are tiny (i.e., getting out of bed, making dinner, washing laundry), they are still victories in our war against chronic illness and they should be celebrated! I know it’s so easy to only see our failures and inabilities. I do it so often with myself. But join me in taking a moment each day to reflect on the victories and to focus on the blessings in our lives. Then we can go to bed each night knowing that we fought the good fight, gave it our all, and are determined to wake up and do it all over again...no matter what. Stay strong and determined, my friends! I am always praying for you.

A New Week: I Am 6 Pounds Lighter!

Our beach vacation reminded me that I miss walking!

I’m not even going to pretend to understand it, but I weighed myself for the new week and I lost those 6 lbs. that I gained during the first 2 weeks of my weekday walk challenge. That puts me down 2 lbs. from my starting weight. Yay!

Maybe it was because my body was struggling to adjust. Perhaps being on more of a liquid diet this week from dealing with a cold helped. Or maybe my scale was just messing with my head. Regardless of the reasoning behind this gain and now loss, I’m proud of myself. Expect for this past Friday (because it was chilly and rainy and I didn’t want to make my cold worse), I have been dedicated to my goal of walking a half of a mile every weekday morning. Even when my legs got all incredibly sore and cramped up, I pushed through it.

In the end, all the added pain and discomfort is well worth it! If losing weight and getting more fit has a chance of lessening my fibromyalgia symptoms, I am going to be there every morning that I can. This is MY body. It isn’t under fibro domain and never will be. Here is to taking back our bodies and our lives from chronic illness, one baby step at a time!

What are you doing to help ease or reverse some of your chronic illness symptoms? How well are you doing with sticking with it and pushing through the hard days?

Sudoku Puzzles: A Distraction and a Reminder for This Fibro Sufferer

Photo Credit: Public Domain

Since I can remember, I’ve always been a puzzle lover. Jigsaw puzzles, brain teasers, word searches, and crossword puzzles have gotten me through many sick and rainy days. They’ve also helped me to relax and combat insomnia on more occasions than I could count. And now, as an adult, I’ve grown to love and appreciate the unique challenge and fun of Sudoku puzzles. After completing thousands of Sudoku puzzles in last 10 years, they have easily become my favorite type of puzzle.

However, I’ve come to realize that Sudoku puzzles are a wonderful way to gauge just how much my fibromyalgia is actually affecting me, particularly the brain fog part. On a normal day for me in life with fibromyalgia, I can complete a medium-level Sudoku puzzle with a little careful thought. On my better days, the numbers of these medium-level puzzles come easier. On a great day or at least a moment of clarity, I actually have a good chance to finish a hard-level Sudoku puzzle or two. But on my difficult days, I’m lucky if I can make heads or tails of a beginner's Sudoku puzzle.

Last night, I couldn’t sleep. I’ve been sick with a nasty cold, and I slept about 12 hours the night before into yesterday morning. By the time bedtime rolled around, I was tired but my body wasn’t ready to sleep. So, I logged onto Facebook and decided to play a little Sudoku. I was so in the zone and so clear of mind (even with a head cold and it being after 1 am!) that I actually finished a difficult Sudoku puzzle and scored the highest points in my entire history of playing that Facebook app.

But not even 12 hours later, I tried to play Sudoku again on Facebook, and now I can’t even finish an easy Sudoku puzzle. I slept for nearly 8 hours. I awoke feeling fairly refreshed (well, at least for a fibro sufferer). But the clarity is gone again. I’m back to struggling to think through the brain fog that normally lurks in my head. Gone is the feeling that it all makes perfect sense. Gone is the sensation that I’m finally myself again. Gone is the almost effortless thought process that so many people take for granted every day.

If you are a fibromyalgia warrior like me suffering daily from brain fog, know that you aren’t alone. If you are a friend or a loved one of someone with fibromyalgia, this is especially for you. The fibromyalgia sufferers in your life are not faking it or being negligent or lazy. Their memory and cognitive problems are real and overwhelming. During one of their bad days, they are going to need your support more than ever. Just imagine how you would feel if you temporarily forgot names or phones numbers you’ve known for years. Imagine how difficult it would be for you to suddenly be unable to properly express yourself to others because you can’t find the right words at the moment. Imagine how frightening it would be if you forgot where you were or how to get back home for a while.

The worst of these scenarios are usually short lived and only happen occasionally, but just take a moment to imagine how unnerving and awful such an episode would be. And try to fathom how difficult and frightening it is to know it will probably happen again, but you have no idea when or how it will affect you next time. You can’t prepare. You can’t prevent it. The possibility is always lurking around every corner. That, my friends, is what it is like living with fibro fog. Please keep that in mind the next time the fibro warrior in your life forgets something important or does something that seems completely ridiculous. Living with fibromyalgia is a lot harder than most healthy people assume.

Weight Loss: Sometimes a Gain Is a Gain

This morning I entered my new weight on my MyFitnessPal profile.  I have been putting it off this week because when I stepped on the scale Tuesday, not only did I gain back the 2 lbs. I have lost so far, but I also gained 4 more lbs. since my renewed fitness starting point.  This was a blow to me because for almost 2 weeks now, I have been walking a half of a mile every weekday with my son and our dog, Honey Bear.

I have cut my time from an hour to as little as 20 minutes for this distance.  Walking doesn't hurt me nearly as much as it did at the beginning (at least, usually).  I can swear I see a difference in my thighs and hips already.  And my jeans are definitely looser in the front.  So, to see the number go up so far in so little time was shocking to say the least!

However, I have decided that sometimes a gain IS a gain with weight loss.  (1) I have proven to myself that when I put my mind to something, fibromyalgia can't stop me.  There were some hard days...and I know there are going to be plenty more.  Sometimes, I creep back a lot closer to needing an entire hour to walk a half of a mile.  Sometimes, I'm tempted to give up.  But I've decided that weight loss is an important step towards reclaiming my life.  As long as I remember this, fibro may slow me down, but I CAN do this!

(2) My mobility has improved already since I started walking regularly again.  Yes, I still get terrible leg pain and muscle spasms.  No, I won't be running or skipping any time soon.  Still, my balance and coordination are a little better, and I seem to be having less issues with my lower body.  It would appear my legs and feet don't get painful and achy as quickly now.

(3) I may have gained 6 lbs.in almost 2 weeks, but I'm definitely seeing some change in my thighs and hips.  I won't even pretend to understand what is going on with my body right now, but if I must gain a few pounds to start seeing some slimming, I'm all for it!  Who am I to argue with progress, even if it is disguised as a defeat?

I Live in Constant Fear of Losing My Mind

I’m going to confess something to you today. I live in constant fear of losing my mind. No, I don’t question my sanity. Well, at least the vast majority of the time. I’m not concerned that I’ll snap and go postal one of these days. Oh, and I’m in no danger of losing touch with reality and trying to live a fantasy. I’m much too down to earth for that.

No, there is a constant fear hiding in the back of my mind that fibromyalgia is going to take over completely and my memory will be shot. Even now, my short-term memory is holding on by a thread. I forget to lock doors at night. I forget whether or not I already took my pills. I forget appointments. I forget phone numbers. I forget that I already told people the latest news. I forget recipes that I’ve known by heart for years. I forget usernames and passwords. I forget where I put things. I even forget momentarily where I am.

The list goes on and on in life with fibro fog. Sometimes, my memory lapses only last seconds. Sometimes memories come flooding back with a certain thought, sound, or action. Sometimes, though, the info that I’m searching for is lost forever. It can be an overwhelming and scary life to lead whenever your second biggest personal fear is losing your mind!

My latest mishap that occurred because of a memory lapse happened this morning. My fiance woke me up at 4:30 to tell me that all our cats were outside because they escaped through an opened window. Of course, as soon as he mentioned that open window, I remembered immediately that I was to blame. I had only planned on keeping the two screenless windows in the house open for a short time while I was in the room. It was hot in the house and I was overheated and miserable. A couple cracked windows was enough to keep me from melting into a puddle a goo.

I honestly had every intention of closing those windows. I love my furbabies, and I worry all the time about them getting out and eventually getting hurt. Outside is a scary place for a frightened cat that can’t find a way back in the house or that has no clue how to survive. Dangers lurk everywhere. I would never intentionally put my kitties at risk.

That is why my stomach is sick still with the thought that I put them in danger. No, it wasn’t intentional, but accidents do happen and then I wouldn’t be able to forgive myself. I’m thanking God still that all my cats are back in the house safe and dry. Yet, I’m also kicking myself and worrying that something like this will happen again.

We are planning to get new screens for these two windows as soon as possible, but what are the chances that I do something else that inadvertently causes harm? The chances are pretty good with my memory’s track record. And that thought scares me!

I use Google calendar to send me reminders to my cell concerning every important thing I need to remember. That way if I forget I will still get it all finished. Well, it looks like I’ll be adding a lot more daily reminders, including checking all windows and doors. It is time consuming, but almost anything is worth it to win this war for my mind!

10 Things You Should NOT Say to Someone With a Chronic Illness

Normally, I like to talk directly to you, my fellow fibro and chronic illness warriors. YOU are the only people who matter to me. I am here to share in your struggle. I am here to try to help. And I am here to listen and understand. That is the main purpose for writing about my struggle with fibromyalgia.

Today, however, I want to make a little detour from that main purpose and address all those around us: friends, family, co-workers, enemies, critics, and everyone in between. Today, I felt the need to address the top 10 things you should NEVER say to someone suffering from a chronic illness.

10.) “Oh, but this pill will help...” Ladies and gentlemen, I am here to tell you that we chronic illness sufferers DO want to get better. We DO appreciate your advice. We DO love that you are concerned and are trying to help. But please, take a moment and listen. Some of us (particularly those with fibromyalgia) have tried everything under the sun, and we are still struggling. Many chronic illnesses are complex and tend to vary person to person. There is often no cure and no one-size-fits-all treatment plan. Please believe us when we say that a little pill is NOT the answer.

9.) “But you finished all that stuff yesterday...” This is definitely one of my pet peeves! Just because we were able to be productive yesterday, it doesn’t mean that we can’t have a bad day today. Oh, and no, we aren’t just making excuses so we can avoid you and slack on our responsibilities. Actually, our symptoms come and go. Some days are better and some days are rotten. At times, we can catch a glimpse of the old life we used to have. And other times, we are reminded just how fragile and limited our medical conditions can make us. It’s just how life with a chronic illness plays out.

8.) “You just need to get out more...” Why is it as soon as we get discouraged or have a bad day that people assume that we are simply depressed or in a rut? Our symptoms are real. They are NOT in our heads. Having a flare day is NOT a sign of weakness or of a poor outlook on life. And no, our problems cannot be solved simply by getting a social life. Would you try to treat the flu or the chickenpox with a girls’ night out? I don’t think so!

7.) “Oh, I felt like that once; it wasn’t so bad...” Wait? You didn’t just go there! Attempts at sympathy and understanding are very much welcomed. But since you haven’t walked a mile in our shoes, check your judgement at the door, please. There is NO way you are going to win any bonus points by trying to trivialize our symptoms. We know what we feel. It is very real and very present for us. For everyone’s sake, please keep your comparisons to yourself...or even better, don’t make them at all!

6.) “But I thought you’ve seen a bunch of doctors...” Yes, we have visited more doctors than we care to remember. We have been poked, prodded, and violated in ways that would make you cringe. We have spent thousands--even millions--of dollars and countless hours trying to get to the bottom of our medical conditions. And we will continue throwing endless time, energy, and cash away in our pursuit for health. Nevertheless, we aren’t cured and some of us aren’t really even better than when we started out. Doctors aren’t magicians or miracle workers. There are some things even they can’t fix.

5.) “You’re still sick? I’ll keep praying...” Now don’t get me wrong. Prayer is a wonderful thing, and we always appreciate it. God is up there listening and He has been known to create miracles from time to time. However, man can’t live on prayer alone. Just like you we have other needs. With your next prayer, could you throw in a prepared meal on a flare day? Or maybe an offer to pitch in around the house? Or perhaps a little companionship during the periods we are stuck at home. Thank you for petitioning the Lord for what He might do to help, but don’t forget the little things you could do to help, as well. It’s the little things that mean the most!

4.) “Maybe if you just tried a little harder...” Oh, this one irks me to no end! We chronic illness sufferers fight every day for so many things people normally take for granted. We fight to keep our food down. We fight to walk. We fight to take care of ourselves. We fight to do the simplest of tasks. Having a chronic illness is downright hard work, but we keep at it day after day. We are relentless, merciless overachievers, and it bothers us immensely when we can’t measure up. So, what makes you think we could push ourselves anymore than we already do? It simply isn’t humanly possible.

3.) “Perhaps you only need a little more faith...” God IS a miracle worker. He DOES heal the faithful and CAN move mountains for those who truly believe. But isn’t it a little arrogant to believe that you know what God is or isn’t doing in someone else’s life or what He is thinking? The truth is the Lord works in mysterious ways. He often does the exact opposite of what mankind believes should happen. And by the way, I think I remember hearing something about only needing faith the size of a mustard seed.

2.) “But you don’t look sick to me...” This statement here is a verbal slap in the face! Please, don’t ever say this to anyone with medical problems. Since when is there a visual requirement for being sick? There are a lot of illnesses and conditions out there that are quiet and devious. They silently wreck people’s lives with little to no external evidence. You wouldn’t tell someone that they aren’t suffering from heartburn or a headache, so please don’t take it upon yourself to judge whether or not we are suffering from a chronic illness.

1.) “But don’t you want to do more with your life...?” No, chronic illness is NOT a poor career move. It is NOT a poor lifestyle choice. We didn’t wake up one day and say, “Oh, I think I’ll develop a life-altering condition today.” We still have our hopes and dreams. We still have our desire for and vision of a better, more prosperous tomorrow. We struggle with our worth, our usefulness, and our purpose. Exactly like you, we want--we NEED--to feel like we are living a productive and purposeful life. If it were up to us, we’d kick chronic illness to the curb in a New York second and move on to greener pastures. But that’s the thing. It is NOT up to us. We are stuck in an unfair situation, and we are forced to make the best of it. Yes, that is the life we have been given, and we choose every day to live it as best as we can. How could you expect anything more?